DIGITAL HEALTH
○ SAGE Publications
Preprints posted in the last 90 days, ranked by how well they match DIGITAL HEALTH's content profile, based on 12 papers previously published here. The average preprint has a 0.03% match score for this journal, so anything above that is already an above-average fit.
Humphreys, G.; Jensen, S.; Manchester, K.; Sanal-Hayes, N.; Gluchowski, A.
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While wearable activity trackers (WATs) are widely used in the present day, with device ownership increasing, some individuals subsequently discontinue device use. Existing research primarily examines the initiation and maintenance of device use, with less focus on device discontinuation. Examining this phenomenon can provide valuable insight into human-computer interactions and habit reversal. Therefore, the current study examined the perceived emotional and behavioural impact of WAT discontinuation, alongside reasons for this action in former WAT users. Fifteen former WAT users (9 female, aged 23 to 56 years) who reported either full or partial device discontinuation were interviewed. Three themes and nine sub-themes were identified which detailed the impacts of device discontinuation. Participants reported a mindset shift around ones body image, exercise performance and exercise motivation. Device discontinuation removed numerical feedback provision which led to participants gaining bodily intuition and a sense of freedom. However, discontinuation also resulted in short-term negative emotions including frustration around the loss of external praise and envy in current WAT users. Current findings hold important implications around digital safety from user perspective, highlighting the need for guidance around healthy WAT use and vulnerable user profiles. More broadly, findings also raise the need for physical activity promotion whilst protecting individuals well-being.
Mwaka, E. S.; Nabukenya, S.; Kasiita, V.; Bagenda, G.; Rutebemberwa, E.; Ali, J.; Gibson, D.
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BackgroundMobile phone-based tools are increasingly used to collect data on non-communicable disease (NCD) risk factors, particularly in low-resource settings where traditional data collection systems face operational and infrastructural constraints. This study examined stakeholder perspectives on the use of enhanced mobile phone-based capabilities to support the collection of public health surveillance data on NCD risk factors in low-resource settings. MethodsAn exploratory qualitative study was conducted between November 2022 and July 2023. Twenty in-depth interviews were conducted with public health specialists, ethicists, NCD researchers, health informaticians, and policy makers in Uganda. Thematic analysis was used to interpret the results. ResultsFour themes emerged from the data including benefits of using mobile phone capabilities for NCD risk factor data collection; ethical, legal and social implications; perceived challenges of using such mobile phone capabilities; and proposed solutions to improve the utility of phone-based capabilities in data collection on NCD risk factors. Participants recognized the potential of mobile technologies to improve data collection efficiency and expand access to hard-to-reach populations. However, concerns emerged regarding inadequate informed consent, risks to privacy and confidentiality, unclear data ownership, and vulnerabilities created by inconsistent enforcement of data protection laws. Social concerns included low digital literacy, unequal access to mobile devices, and fear of stigmatization. Participants emphasized the need for transparent communication, robust data governance, and community engagement. ConclusionMobile phone-based systems can strengthen the collection of NCD risk factor data in low-resource settings; however, their benefits depend on addressing key ethical, legal, and social challenges. To ensure responsible deployment, digital health initiatives must prioritize participant autonomy, data protection, equity, and trust building. Integrating contextualized ethical, legal, and social considerations into design and policy frameworks will be essential to leveraging mobile technologies in ways that support inclusive and effective NCD prevention and control.
Heidenreich, B. M.
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Background. Complex cases in specialized pediatric care require consistent adherence to evidence-based clinical pathways and protocols to ensure safe, high-quality, and equitable care. Currently, clinical pathways and supporting documentation are frequently distributed across multiple platforms, leading to fragmentation. Human-centered design principles can guide the development of healthcare technologies that minimize cognitive load and support rapid, efficient access to relevant information in clinical settings. The purpose of this study is to design and evaluate perceived usability of a pediatric cardiac center digital guideline management system that is embedded within the electronic health record leveraging human-centered design. Methods. This study used a mixed-methods usability evaluation to assess a digital guideline management system prototype embedded into clinical workflow. Through human-centered design principles, the prototype provides a centralized digital document library that organizes cardiac-specific clinical pathways, guidelines, procedures, and related resources. A small but diverse sample, encompassing a wide variety of roles and clinical areas within the pediatric cardiac center, was recruited to evaluate the perceived usability of the prototype. Usability was evaluated by stakeholders using the validated System Usability Scale (SUS) with additional optional questions to understand perceptions of the information architecture and clinical value. Results. Preliminary usability testing showed a mean SUS composite score of 76.5, indicating above average usability. Questions related to the complexity of the system and user confidence received high scores across participants. Lower scores were observed for questions related to usage frequency and ability to learn the system very quickly. Conclusion. Leveraging human-centered design when building a digital guideline management system embedded within clinical workflow revealed positive perception from participants. By centralizing access to clinical resources, this prototype can reduce current-state fragmentation. Further evaluation of larger samples is needed to develop a list of future recommendations.
Durocher, K.; Kemp, J.; Shin, H. D.; Jackson, K. T.; Strudwick, G.
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Patient portals are online tools that enhance patients access to various aspects of their health care, including provider communication, medication information, and lab results. As portals continue to be integrated into health systems, it is imperative to understand the experiences of various groups who utilize their functions. Womens experiences of using patient portals have been scantly explored in the literature, including their perceptions about use for mental health care. The purpose of this study was to explore womens experiences of accessing and using a variety of patient portals, including their perceptions of usefulness for mental health care. A qualitative descriptive methodology was used to explore womens experiences of accessing and using patient portals across Canada. Purposive sampling was used to recruit ten women, who completed semi-structured, one-to-one interviews between April-June 2025. Conventional qualitative content analysis was used to analyze the data. Each woman had used at least one patient portal for their health care at the time of their interview. Four main themes emerged from the data, including: (1) the health care lived experience, (2) individual autonomy, (3) provider partnership, and (4) portal improvement. The interrelated themes contain narrative descriptions of individual experiences of accessing and using patient portals, and implications for using portals for womens mental health care. These results demonstrate a variety of womens experiences. Patient portals were found to impact their lived experiences with health care, enhance individual autonomy, and foster partnerships with their health care providers. The women also suggested various areas of improvement in portal design elements, features, and privacy functions. Future research should focus on evaluating the design of new portals to ensure they meet the needs of the population they serve. Author SummaryA patient portal is an example of a digital tool that is being integrated into various health organizations to supplement in-person care. Depending on the design and the complexity of the portal, patients may be able to complete online prescription renewals, access medication schedules, virtually communicate with their providers, and review their clinical notes. However, as digital tools continue to be produced and adapted within health settings, it is crucial to understand how they can best serve different populations. In this study, we explored womens experiences with using patient portals for their health care in Canada. We also aimed to understand womens perspectives on how patient portal use can be optimized for mental health care. We performed virtual interviews with 10 women who had used at least one patient portal for their health care, and gained their perspectives on accessibility, useful features, and how using a patient portal impacted their experiences of receiving health care. The women discussed how portal use improved their health care experiences and they suggested a variety of features to support mental health care as patient portal designs continue to be adapted to different settings.
Loh, K. J.; Lee, W. L.; Ng, A. L. O.; Chung, F. F. L.; Renganathan, E.
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BackgroundCaring for people with dementia can impose a considerable psychological burden on caregivers, yet access to caregiver support in Malaysia remains limited. The World Health Organizations iSupport for Dementia program provides dementia education via textual, e-learning format. However, a culturally adapted Malaysian version has not been available. ObjectiveThis study aimed to develop and gather user feedback on a culturally adapted, multimedia version of iSupport tailored for Malaysia (iSupport-Malaysia). MethodsGuided by a four-phase cultural adaptation framework, the generic iSupport content was translated into Bahasa Malaysia, adapted to local customs, and transformed into multimedia lessons on an e-learning platform. A mixed-methods design was used to explore user perceptions and evaluate usability through four homogeneous focus group discussions and 15 individual usability test sessions with informal caregivers (FG: n=9; UT: n=9) and healthcare professionals (FG: n=11; UT: n=6). Focus groups examined aesthetics, ease of use, clarity, cultural relevance, comprehensiveness, and satisfaction. Usability testing involved Think Aloud tasks, post-test questionnaires, and brief interviews. Qualitative data was analysed thematically, and descriptive statistics summarised usability performance. ResultsiSupport-Malaysia demonstrated good usability (M=74.3{+/-}18.0), with most tasks completed without assistance. Strengths included interactive learning activities, peer discussion features, and flexible self-paced learning. Content was viewed as culturally appropriate, credible, and useful. Suggested improvements included enhancing visual aesthetics, shortening videos, refining quizzes, and increasing practical relevance. ConclusionUser insights indicate that iSupport-Malaysia is usable and culturally appropriate. These findings will inform refinement of the platform prior to the pilot feasibility study and provide recommendations for future multimedia-based caregiver interventions.
Onah, C.; Ajonye, A. A.
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Medication adherence among patients with diabetes remains suboptimal in low- and middle-income countries, including Nigeria. Emerging digital health interventions such as AI-powered virtual support may be associated with improved adherence behaviours. This study examined self-care competence and perceived AI-powered virtual support as predictors of medication adherence among patients with diabetes. A cross-sectional survey was conducted among 450 patients recruited through multistage sampling across hospitals in Benue State, Nigeria. Standardised measures of self-care competence scale, perceived AI support scale, and medication adherence scale were analysed using correlation and regression analyses. Results showed that, self-care competence significantly predicted medication adherence (R2 = .161), although some components (glucose management, physical activity, healthcare use) showed negative associations. Perceived AI-powered support demonstrated stronger predictive power (R2 = .328), with social presence ({beta} = .311, p < .001) and social interactivity ({beta} = .142, p < .01) emerging as key predictors. The combined model explained 36.3% of variance (R2 = .363). In conclusion, perceived AI-powered virtual support, particularly socially interactive features, plays a significant role in enhancing medication adherence and may complement traditional self-care strategies. It is recommended that clinicians should therefore adopt a hybrid care model that integrates traditional patient education with AI-assisted interventions. This approach can help bridge gaps caused by high patient loads and limited consultation time, while also enhancing personalised care.
Calderon, P. F.; Wolosker, N.
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Objective: Develop a methodology to implement action plans that mitigate the negative impacts associated with the EHR implementation project and evaluate their effectiveness in reducing these issues. Methods: The research involved the development of mitigation plans for the potential negative impacts of implementing an electronic health record system, ensuring their execution and subsequently analyzing the effectiveness of the method. Results: Findings confirmed that 19.3% of 264 identified impacts were resolved through 52 plans before Go Live. During Go Live, the remaining 213 impacts were addressed through 337 plans. Six months later, 190 impacts were confirmed, and the plans were considered effective or partially effective in 80.5% of cases. Conclusions: Effective governance, a multidisciplinary methodology, and well-planned and executed actions increase the likelihood of success for health technology projects.
Perdona, G. C.; da Costa, T. C.; da Silva, C. M.; de Fazio, R. B.; Zanutto, N. T.; Lopes, C. E. C. E.; Facci, L. B.
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Introduction: Physical activity during pregnancy can be tracked directly by accelerometer measurements and indirectly by validated questionnaires. Considering the advancement of the Internet of Things (IOT), managing and/or monitoring physical activities can be better explored to analyze individuals, as well as indirectly compare the intensity and domains of physical activities carried out by pregnant women. The project, called 'EVA'(Expert Virtual Assistant), suggests combining several fields of knowledge to obtain better information about physical activity during pregnancy, surpassing the claim made in previous research that studying and measuring the duration of daily physical activities in pregnant women is a challenge. Objective: In the present study, we present the results of the first stage of the EVA project, which aims to develop a Virtual Assistant (VA) in Portuguese, providing examples of health management features for monitoring Physical Activity measurements for pregnant women assisted in the Unified Health System (SUS) and the adaptation of the Pregnancy Physical Activity Questionnaire (PPAQ). Methods and Analysis: The methods used were developed in two stages: adapting the physical activity questionnaire and building the Virtual Assistent to monitor physical activities. Thirty pregnant women who used the Unified Health System (SUS) in the city of Ribeirão Preto, Brazil participated in the study. The pregnant women wore sensor wristbands (accelerometers) and answered the sociodemographic, lifestyle and physical activity questionnaires via an application developed for this study. Results: The questionnaire used was the PPAQ adapted for Brazilian pregnant women. The most important changes were in the occupational domain for the house cleaning and in sedentary behavior activities. In the pilot study, it was observed that pregnant women spend more energy at home and in light and moderate intensity activities. textbfConclusion:This study made important contributions to evaluating PA in pregnant women. The proposal and studies for the construction of the AV-EVA, the inclusion of a specific occupational domain for pregnant women with domestic occupations and the new cutoff points for PA intensity measurements obtained via accelerometers.
Nakagawa, S.; Kumagai, S.; Yamamoto, A.
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BackgroundCOCOA, Japans Bluetooth-based COVID-19 contact tracing app, was widely regarded as ineffective due to persistently low key-match counts. However, this assessment may have conflated two distinct phenomena: (1) a structurally suppressed positive registration rate caused by administrative friction in the HER-SYS linkage, and (2) genuine epidemiological inefficacy. ObjectiveTo empirically examine whether the correlation between individual COCOA key-match counts and regional COVID-19 case numbers depended on positive registration rate, using a unique longitudinal dataset from a single observer with a rigorously controlled behavioral pattern. MethodsThe corresponding author (S.N.) recorded daily key-match counts from his personal iPhone from January 10 to October 8, 2022, encompassing the Sixth Wave (January 10-April 20, 2022) and Seventh Wave (July 9-September 2, 2022). Daily reported COVID-19 cases in Tokyo were obtained from publicly available NHK data. Pearson correlation coefficients were calculated for each wave period separately. ResultsDuring the Sixth Wave, no meaningful correlation was observed between key-match counts and daily case numbers (r2 = 0.018, p = 0.059, n = 194). In contrast, during the Seventh Wave, a strong positive correlation emerged (r2 = 0.530, p < 0.001, n = 56). This correlation disappeared abruptly after September 12, 2022, coinciding with Japans revision of the mandatory full case reporting (Zenshu Todokedashi) policy, which substantially reduced positive registrations in COCOA. ConclusionsCOCOAs utility as an individual infection risk indicator was critically dependent on positive registration rate rather than app installation rate. These findings provide the first real-world empirical evidence supporting the threshold effect predicted by prior simulation studies, and offer important lessons for the design of digital tools in future pandemic preparedness.
Nkweteyim, R. N.; Shet, V. G.; Iregbu, S.; He, L.
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Managing diabetes-related conditions is time-intensive and cognitively demanding for patients and caregivers, requiring ongoing glucose monitoring, dietary regulation, physical activity planning, and continuous lifestyle adaptation. With the emergence of large language models (LLMs), patients have increasingly turned to these tools for information, guidance, and support. However, there is limited empirical understanding of which diabetes-related medical tasks patients delegate to LLMs and what their experiences are. To address this gap, we combined qualitative thematic analysis with LLM-assisted analysis to examine patient attitudes and real-world use cases in using LLMs for diabetes-related tasks. Our analysis identified diverse application areas, ranging from clinical interpretation to nutrition and diet support, and disease management amongst others. LLMs functioned not only as information sources, but as interpretive, analytical, decision-support, emotional, and logistical aids supporting patients self-management. Last, we discuss implications for integrating LLMs into patients self-management support ecosystems and identify areas that require support and safeguards.
Shakya, N. R.; Dahal, S.; Shrestha, N.; Webb, G.; Stensdotter, A.-K.
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BackgroundThe COVID-19 pandemic significantly disrupted healthcare services globally, particularly in low-resource settings. This study explores the impact of the pandemic on physiotherapy services in Nepal. MethodsA cross-sectional study was conducted. Qualitative data were collected through semi-structured interviews with 12 physiotherapists, while quantitative data were gathered from an onsite survey of 29 health facilities at six different districts of Province III of Nepal. Inductive thematic analysis approach was used to analyze the qualitative data, and descriptive statistics were used for the closed ended questions. ResultsThe findings were categorized into sub-themes under two major themes: i) Pandemic effect on physiotherapy services and patient care and ii) Adaptation, innovation and collaboration. The study revealed a significant disruption in physiotherapy services with a notable decline in patient flow and service availability. Most patients, especially those with disabilities and post-operative needs, experienced worsening conditions due to limited access to care. There was an increased recognition of the role of physiotherapy in acute respiratory care and post-COVID-19 recovery. Tele-rehabilitation was explored as an alternative care method but faced challenges in implementation. More than half (62.07%) of the centers reported uninterrupted physiotherapy services, whereas almost one third (31.03%) experienced service suspension. Most centers (89.7%) had personal protective equipment available, and majority (86.2%) of the physiotherapists worked in multidisciplinary team: fever clinics, triage, emergency care, respiratory physical therapy, and nursing and administrative support were among the expanded roles. Several centers (37.9%) used virtual care with telephone consultation serving as the primary modality. Virtual service was mostly absent in centers where in-person services persisted. ConclusionThe COVID-19 pandemic significantly impacted physiotherapy services in Nepal, leading to service disruptions and compromised patient care. It highlighted the need to further incorporate physiotherapy into the healthcare system and enhance rehabilitation services to improve continued patient care.
Blankson, P.-K.; Hussien, S.; Idris, F.; Trevillion, G.; Aslam, A.; Afani, A.; Dunlap, P.; Chepkorir, J.; Melgarejo, P.; Idris, M.
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BackgroundRecruitment remains a major barrier to timely clinical trial completion. Trialshub is an LLM-powered, chat-based platform intended to help users identify relevant trials and connect with coordinators to streamline recruitment workflows. ObjectiveTo evaluate the perceived usability and operational value of Trialshub, and identify implementation considerations for real-world deployment. MethodsA usability test was conducted at Morehouse School of Medicine for the Trialshub application. Purposively selected participants included clinical research coordinators and individuals with and without clinical trial search experience. Participants completed a pre-test survey assessing demographics, digital health information behaviors, and familiarity with AI tools, followed by a moderated usability session using a Trialshub prototype. Users completed scenario-based tasks (locating a breast cancer trial, reviewing results, and initiating coordinator contact) using a think-aloud protocol. Task ratings, screen recordings, and transcribed feedback were analyzed descriptively and thematically, and reported. ResultsParticipants reported high comfort with using digital tools and moderate-to-high familiarity with AI. Trialshubs chat-first design, guided prompts, and checklist-style eligibility display were perceived as intuitive and reduced cognitive load. Fast access to trials and the coordinator-contact workflow were viewed positively. Key usability issues included uncertainty at step transitions, insufficient cues for selecting results and next actions, and inconsistent system reliability (loading delays, errors, and broken trial detail pages). Participants also noted redundant questioning due to limited conversational memory, requested improved filtering/sorting, and clearer calls-to-action. All participants indicated that Trialshub has strong potential to meaningfully improve clinical trial processes. ConclusionsTrialshub shows promise for improving trial discovery and recruitment workflows, with identified design implications for real-world deployment.
Mantena, S. D.; Johnson, A.; Schuetz, N.; Tolas, A.; Montalvo, S.; Delgado-SanMartin, J.; Ramirez Posada, M.; Du, L.; Zhang, S.; Huynh, A. D.; Oppezzo, M.; King, A. C.; Schmiedmayer, P.; Lawrie, A.; Rodriguez, F.; Ashley, E.; Kim, D. S.
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Objective: Hispanic/Latinx populations in the U.S. experience higher rates of chronic disease linked to physical inactivity, yet digital health interventions remain largely inaccessible to more than 16 million Hispanic/Latinx adults with limited English proficiency. While large language models (LLMs) offer scalable personalization, their use in non-English behavioral coaching is unexplored. This study introduces MHC-Coach-ES, a Spanish-language LLM fine-tuned on the Transtheoretical Model (TTM) of behavior change. Materials and Methods: We fine-tuned Llama 3-70B-Instruct using a two-stage pipeline. First, the model was adapted to Spanish health and motivational language using a 2.21-million-token corpus. Second, it was instruction-tuned on 3,268 translated human written messages to align the model with the Transtheoretical Model (TTM) of Behavioral Change. We compared MHC-Coach-ES with Llama 3-70B-Instruct and translated human-expert messages using a forced-choice preference survey (N = 77) and blinded expert review (N = 2). Results: Spanish-speaking participants significantly preferred MHC-Coach-ES messages over translated human-expert messages (81% preference, P<0.001). Linguistic analysis showed that MHC-Coach-ES produced more temporally anchored messages than the base model (65% vs. 20%), while maintaining readability. In blinded evaluation, clinical experts rated MHC-Coach-ES higher for alignment with Transtheoretical Model stages than human-expert messages (4.83 vs. 4.38 out of 5). The base model also outperformed translated expert messages across preference and expert ratings. Conclusions: Generative AI can operationalize behavioral science frameworks in Spanish, offering a scalable approach to reducing health disparities. The strong performance of both MHC-Coach-ES and the base model highlights the promise of generative and personalized approaches over translation-based localization for theory-driven behavioral interventions.
Jafarifiroozabadi, R.
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Background: Safety is a critical concern in behavioral health crisis units (BHCUs), where environmental risks (e.g., ligature points) can lead to injury to self or others. However, limited research has examined how perceived safety influences facility selection among patients and care partners, or how these perceptions align with AI-driven safety risk assessments in such environments. Method: To address these gaps, a nationwide discrete choice online survey was conducted using image-based scenarios of BHCU environments, where participants selected preferred facilities based on a range of attributes, including environmental safety risks (e.g., ligature points). Additionally, participants identified safety risks in survey images, which were compared with outputs from an AI-driven tool developed and trained to detect environmental risks by experts. Quantitative analysis using conditional logit models examined the influence of attributes on facility choice, while spatial comparisons of annotated images and heatmaps assessed participant and AI-identified risk alignments. Results: Findings revealed that the higher frequency of safety risks in images significantly reduced the likelihood of facility selection (p < .001, OR {approx} 1.28), highlighting the importance of perceived safety in user decision-making. While there was notable alignment between heatmaps generated by participants and AI, key differences emerged, suggesting that participant safety perception was influenced by features not fully captured by AI, such as the type of materials or unknown, out-of-label safety risks in facility images. Conclusions: Despite these limitations, results highlighted the value of integrating AI-driven assistive tools for non-expert user safety risk assessment to support decision-making for safer BHCU environments.
Wang, J.; Yang, Z.; Zhu, Z.; Zhu, X.; Huang, Z.; Wang, H.; Tian, L.; Cao, Y.; Qu, X.; Qi, X.; Wu, B.
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Background: LLMs enable patient-facing conversational agents, creating a pathway toward digital twins that capture older adults' lived experiences and behavioral responses across time. A central barrier is personality drift---inconsistent trait expression across repeated interactions---which undermines reliability of generated trajectories and intervention-response simulation in geriatric care. Objective: To develop ELDER-SIM, a multi-role elderly-care conversational platform for building personality-stable digital twin agents, and to propose a psychometric validation framework for quantifying personality consistency in LLM-based agents. Methods: ELDER-SIM was implemented via n8n workflow orchestration with local LLM inference (Ollama/vLLM), integrating (1) Big Five (OCEAN) trait specifications, (2) a Cognitive Conceptualization Diagram (CCD) grounded in Beck's CBT framework, and (3) a MySQL-based long-term memory module. Ablation studies across four conditions---Baseline, +Memory, +CCD, and +LoRA (fine-tuned on 19,717 instruction pairs from CHARLS)---were evaluated via Cronbach's $\alpha$, ICC, and role discrimination accuracy. Results: Personality measurement reliability was acceptable to excellent across conditions (Cronbach's : 0.70-0.94), with consistently high test-retest stability (ICC: 0.85- 2 0.96). Role discrimination improved stepwise from 83.3% (Baseline) to 88.9% (+Memory), 94.4% (+CCD), and 97.2% (+LoRA). CCD produced the largest gain in internal consistency (mean 0.702[->]0.892), while LoRA achieved the highest overall internal consistency ( 0.940) and ICC (0.958). Conclusions: ELDER-SIM provides a psychometrically validated approach for constructing personality-consistent elderly digital twin agents. Structured cognitive modeling and domain adaptation reduce personality drift, supporting reliable longitudinal simulation for elderly mental health care and reproducible in silico evaluation before clinical deployment.
Matimo, C. R.; Kacholi, G.; Mollel, H. A.
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BackgroundDigital health plays an indispensable role in facilitating data analysis and use for enhancing healthcare delivery across health settings. However, there is scant information on the extent to which digital health influences the improvement of primary health services delivery through data use. This study examined the determinants that influence the use of digital health to improve health service delivery in council hospitals in Tanzania. MethodsA cross-sectional design was employed in six regions, involving 12 council hospitals. We used a self-administered questionnaire to collect data from 203 members of hospital quality improvement teams. Descriptive analysis was used to determine the frequency, proportion, and mean of responses, while bootstrapping analysis was conducted to test the statistically significant influence of digital health factors on data use for improving health service delivery. ResultsResults show moderate agreement on data compatibility for planning and decision-making, with 40.4% of respondents agreeing it supports ordering commodities, 43.8% for staff allocation, and 38.4% for planning. However, dissatisfaction was higher for user-friendliness (47.8%), reliability (up to 65.5%), and usefulness (up to 63.5%). Overall, 50.2% (M=2.74{+/-}0.87) disagreed that digital systems effectively support data use. Structural model analysis confirmed significant positive influence of usefulness ({beta}=0.199, p<0.001) and access to quality data ({beta}=0.729, p<0.001) on data use, which strongly impacted service delivery ({beta}=0.593, p<0.001), despite some factors showing no direct influence. ConclusionThe study finds that current digital health initiatives only modestly improve the user-friendliness, reliability, and usefulness of data systems, partly due to fragmented, non-interoperable platforms that burden data management. However, compatibility, usability, reliability, and usefulness of digital tools significantly enhance access to quality data and data-driven decisions. The study recommends strengthening and integrating existing systems and providing continuous digital health training to institutionalize data-informed decision-making.
Svihrova, R.; Marzorati, D.; Odello, T.; Monachino, G.; Staletti, T.; Tieben, R.; Luigies, R.; Bodewes, N.; Rutten, W.; Barrett, G.; Bhogal, A.; Wilkinson, T.; Tzovara, A.; Faraci, F. D.
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Cardiac rehabilitation is critical for secondary prevention, yet long-term adherence remains low. We present CUOREMA, a new personalized mobile health system integrating self-monitoring diaries, wearable data, virtual coaching, and reinforcement learning-enhanced adaptive interventions to support lifestyle change during and after outpatient cardiac rehabilitation. In a six-month two-center feasibility study (N = 53, Switzerland and France), we evaluated usability, engagement patterns, and preliminary health-related outcomes. Attrition was high: only 19\% of participants used the app on more than 100 days, and questionnaire response rates declined from 55\% at baseline to 13\% at six months. Despite these limitations, exploratory data-driven analysis revealed three distinct engagement clusters (dropout, sporadic, and consistent), which were further supported by matching patterns in app component usage, medication diary adoption, and smartwatch wearing time. Engagement clusters were not associated with demographic factors; instead, psychological themes of patients' personal goals suggested that intrinsic motivation characterized sustained users, whereas extrinsic motivation predominated among early dropouts. User experience was rated positively, and validated questionnaire scores showed no deterioration over time. One center demonstrated a statistically significant improvement in 6-minute walking test performance, though the study was not powered to detect clinical outcomes and selective dropout cannot be ruled out. These findings highlight engagement variability as a central challenge in digital cardiac rehabilitation and suggest that tailoring interventions to individual motivational profiles may improve long-term adherence.
Giblett, M. J.; Babikian, Y.; Jhala, D. J.; Medland, S. E.
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Pharmacogenomics (PGx) offers a pathway towards personalised medicine, which relies on health consumer involvement in making informed decisions. As consumers increasingly seek health information online, high-quality digital resources are essential to support informed consent and shared decision making. The complexity of PGx and widespread limitations in health literacy raise concerns about whether existing consumer-facing online PGx resources are understandable and sufficiently comprehensive. This study evaluates the readability, visual design, and informational quality of publicly available online written PGx health information. Twenty-three webpages met inclusion criteria. The mean readability corresponded to approximately 15 years of formal education (university level), substantially exceeding the Australian Government's recommended Year 7 reading level for public health materials. Informational quality was generally low, with most webpages being rated as poor or very poor. In contrast, visual design quality was relatively strong, with webpages achieving on average around three-quarters of the criteria. Although the visual presentation of PGx webpages is generally professional, their high reading difficulty and limited discussion of treatment choices and uncertainties reduce their usefulness for health consumer education. Improving readability, clearly communicating risks and limitations, and incorporating decision-support features may enhance the ability of online resources to support informed consent and shared decision making.
Kurkova, V.; Modanloo, S.; Wu, Y.; Tian, J.; Desnoyers, E.; Adu, M. K.; Wong, G.; Greenshaw, A.; Hayward, J.
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The postpartum period involves profound physical, emotional, and social changes, yet many women report fragmented, infant-centered care that leaves their own needs insufficiently addressed. Digital health tools, including mobile apps, wearables, telehealth, and online resources, are increasingly used by postpartum women to seek information, support, and reassurance; however, little is known about how women experience these tools in their everyday lives. This qualitative study employed thematic analysis to explore the perspectives of postpartum women on digital health. Postpartum women ([≤]12 months after birth) living in Alberta, Canada, were recruited through maternity clinics and targeted social media advertisements. Four virtual focus groups (4-6 participants in each; 18 participants overall) were conducted via Zoom using a semi-structured guide on postpartum healthcare experiences, use of digital tools (apps, wearables, telehealth, AI), and perceived barriers and facilitators to adoption. Sessions were audio-recorded, transcribed verbatim, and coded by multiple researchers. Thematic analysis identified 32 codes, organized into 12 subthemes and four overarching themes: navigating postpartum support networks; empowerment through digital health tools; conditions for acceptable digital health design; and when technology feels like a burden. Women appreciated multiple sources of support from midwives, public health nurses, peers, and online communities, but described care that quickly became infant-focused, leaving their own recovery and mental health under-addressed, particularly in rural settings. Digital tools helped mothers structure infant and self-care, track symptoms, and prepare for appointments, yet also created new forms of burden, including information overload, usability challenges, privacy concerns, and feelings of surveillance or pressure to perform. Participants emphasized personalization (flexible notifications, mother-focused content), embedded mental health support, integration with trusted providers, and co-designed, credible platforms endorsed by Canadian health systems. Overall, to be acceptable and effective, tools must center mothers needs and be embedded within a broader ecosystem of responsive, continuous care. Author summaryBecoming a parent is a major life change, and many women feel that support from the health system drops off once the baby is born. At the same time, new mothers are increasingly turning to mobile phone apps, wearable devices, online groups, and video visits to answer questions, track health, and feel less alone. We wanted to understand women lived experience with these digital tools after giving birth: what feels helpful, what feels burdensome, and what they would want in an ideal tool. Our research team, consisting of three PhD students, held four online focus group discussions (4-6 participants per group; 18 participants overall) with women in Alberta, Canada, who had given birth within the past year. They described digital tools as both empowering and exhausting. Apps and wearables helped them track feeding, sleep, and symptoms, organize daily life, and come better prepared for medical appointments. At the same time, constant tracking, frequent notifications, and unclear data practices could feel overwhelming, guilt-inducing, or intrusive. This study is an important first step in a larger co-design work. By listening closely to mothers stories, we gathered practical ideas about what a supportive postpartum app should (and should not) do. In future phases, we plan to work directly with postpartum women and frontline clinicians to turn these ideas into a user-friendly, trustworthy digital tool that supports both mothers and babies health.
Madison, M.; Wheaton, L. A.; Rowe, V.
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Background: Occupational therapists can improve stroke survivors hand and arm movement and participation in daily activities through action observation (AO). AO involves watching another persons hand or arm complete a movement or task. While research generally supports the use of AO with stroke survivors, there are limited AO videos are available to occupational therapists which makes applying AO challenging. Objective: The purpose of this work is to develop structured and widely accessible tool to support access to AO for stroke survivors, occupational therapists, and researchers. Methods: To develop an AO video library for stroke rehabilitation, functional and non-functional upper limb task deficits were first identified through clinical observations and clinician interviews to establish a prioritized list of daily activities. In collaboration with media production specialists, healthy adult volunteers were recruited and filmed performing these tasks from both first- and third-person perspectives. The recorded videos were then systematically edited, enhanced with instructional title slides, and distributed via a public YouTube channel for clinical application and a categorized digital repository for research purposes. Results: Initial assessments revealed a complete lack of familiarity, awareness, and utilization of AO resources among local occupational therapists, despite high perceived clinical utility. To address this gap, a final library of 150 tasks was established, resulting in the production of 419 finalized, standardized videos featuring six healthy volunteers. For clinical application, these videos were hosted on a free, public YouTube channel organized into 18 functional playlists, while a parallel set was structured into distinct movement categories for research repository storage. Conclusion: By providing a structured and highly accessible tool, this repository enables clinicians, researchers, and caregivers to readily implement evidence-based action observation interventions in both clinical and home settings.